At SelfDecode, we take your privacy and the security of your genetic data very seriously. Only vetted and trusted employees of SelfDecode have access to the administrator/backend portion of the site and the text files are stored securely on Amazon’s cloud, with only one person having access.
SelfDecode is committed to our users privacy. That is why we ensure our infrastructure meets modern security standards by enforcing the following practices:
- Secure SSL certified connections only
- Script Protection
- Disk Write Protections
- Plugin Access Restriction
- External Security Penetration Testing
- Annual SAS 70 Type II Examinations
- Encryption of All Backup Media
- Maintain Audit Logs
If you are still concerned, we recommend changing the text file name to something random and using a “throw-away email” to sign up.
Your credit card information is handled with secure payment processors (Stripe, Paypal) and no one from SelfDecode has access to it.
Effective: 8th August, 2017
Click here for Terms of Service.
1. General Considerations for User Privacy
We collect information when you register an account, self-report information through surveys, forms, features or applications, use our Services, upload your own content to our Services, use social media connections and features, refer your contacts to us, share information through various interactions with us and our partners, and via cookies and similar tracking technologies.
We use information in general (i) to provide, analyze and improve our Services, (ii) as we reasonably believe is permitted by laws and regulations, including for marketing and advertising purposes, (iii) to protect the security and safety of our company, employees, and customers as we reasonably believe is permitted by laws and regulations, and (iv) to comply with laws and regulations we are subject to.
2. Consent to the Use of Sensitive Information
By agreeing to our Privacy Statement and Terms of Service, you consent to sensitive information, such as information about your health, Genetic Information, and Self-Reported Information such as racial and ethnic origin (where you provide it) being used by us to:
analyze and provide you with our Services;
monitor and improve existing products or services that we offer or to develop new products and services
We will not use your sensitive information without your consent unless: (i) the information has been anonymized or aggregated so that you cannot reasonably be identified as an individual; or (ii) a legal obligation requires us to use it in some way e.g. a court order requires us to disclose the information.
3. Consent to the Transfer of your Personal Information
By agreeing to our Privacy Statement and Terms of Service, you consent to the storing and processing of your personal information, including sensitive information, in the USA and countries outside of the country you live in. We use a range of measures to safeguard information but these countries may have laws that are different from those of your country of residence. You also consent to your personal information, including sensitive information, being transferred in the event of a business transition such as a merger, acquisition by another company, or other transaction or proceeding. In such a case, your information would be used as set out in any pre-existing Privacy Statement.
We will not sell, lease, or rent your individual-level information (i.e., information about a single individual's genotypes, diseases or other traits/characteristics) to any third-party or to a third-party for research purposes without your explicit consent.
You may independently decide to disclose your information to friends and/or family members, doctors, health care professionals, or other individuals outside our Services, including through third-party services such as social networks and third-party apps that connect to our website and mobile apps through our application programming interface ("API"); always review the privacy policies of third-party apps and services before sharing your information.
We may share anonymized and aggregate information with third-parties; anonymized and aggregate information is any information that has been stripped of your name and contact information and aggregated with information of others or anonymized so that you cannot reasonably be identified as an individual.
There may be some consequences of using SelfDecode Services that you haven't thought of, you should read our guide of the surprising things you may find out from using the service (Section 5 of the Terms of Service) before subscribing and uploading your genotype file.
If you have any questions about our privacy practices, please email us at firstname.lastname@example.org or send a letter to the address provided at the top of our Terms of Service.
4. International Visitors
For Users visiting the SelfDecode Website from the European Economic Area or other non-U.S. territories, please note that any data you send in an email to the SelfDecode Website will be transferred outside the European Economic Area or such other non-U.S. territory for use by SelfDecode and its affiliated companies for any of the purposes described herein. In addition, because SelfDecode operates globally, we may make information we gather available to worldwide business units and affiliated companies. By providing any data on the SelfDecode Website, you hereby expressly consent to such transfers of your data to the United States or other countries.
5. In the Event of Merger or Sale
In the event that SelfDecode is acquired by or merged with a third-party entity or undergoes another corporate change of control, including a partial or total sale of assets, we reserve the right, in any of these circumstances, to transfer or assign the personal and other information that we have collected from the SelfDecode Website as part of that merger, acquisition, sale, or other change of control.
6. Updating Personal Information or Deactivating Account
You can request that we deactivate your account. Please note that, if you request that we deactivate your account, we may need to retain certain personal information for record-keeping purposes. We also are unable to remove your personal information from the records of any third parties to whom we have already provided such information. If you wish to correct or delete any information maintained by a third party, please contact the third party directly.